Sunday, January 31, 2010
Saturday, January 30, 2010
To get in on the action head over to my sewing blog. All details and entry info will be there.
All details and raffle will be over on that blog. I will have a chip in button here on the main blog so you can enter here also but, the main info will be there.
Friday, January 29, 2010
Wednesday, January 27, 2010
Monday, January 25, 2010
Friday, January 22, 2010
We start out by getting the big kids ready and off to school by 8am. Then I feed the Little's and get them dressed. If I am lucky I get to shower...by myself. LOL
We head out to the medical building for a surgery recheck and hearing test/evaluation. Normally this isn't the case but today you are lucky, we had to go here first.
The girls settle in and we are called back. Sorry I don't have pictures of the booth but they were a little weirded out by the fact that I wanted to take pictures....maybe next time.
Hope sets herself up at the speech therapist's desk and Grace and I head into the sound proof booth for some hearing tests. She sits on my lap and we wait. They stick tiny little plastic ear plugs with holes into her ears and test for sound waves. We wait, she readjusts, we wait some more, she tries one ear and then the other. Nothing. She assures me this is normal because of the tubes. I am not convinced but ok, I'll go with it. Next comes the sounds test. Grace will sit on my lap while the therapist has toys make different sounds in different areas of the booth. The idea is to get her to respond in some way. She will also sing and talk in order to get Grace to respond.
We do the left ear first and then start doing different sounds in different areas. The left ear responds, she will turn her head each and every time. The right ear....well with very loud noises she will respond, sometimes. The softer noises or when the therapist sings softly, nothing. Not one flinch, just nothing.
Do you know how sad it is to hear something and not be able to move and just have to sit and watch while your child does nothing, realizing she can't hear it. I tell you it's very hard. The thought of my child not being able to hear is scary. She compensates for it. I see little tilts of her head or she moves to another side so she can hear better from her left ear. But, it is still hard.
The therapist then goes over the results with me. She has mild to moderate loss in her right but good sound in the left. No surprises there. The tubes are both wide open and working. Now onto the doctor. He checks everything out and says great, we'll see you in 3-4 mths for a recheck and another hearing test. They keep trying to give me hope and say maybe when she is older, it will get better. They just need to give her more time. I hope so.
It's about 11 am now and our day is just getting started. We head to the fabric store for a quick minute. (yeah right) and then off to the girls' favorite noodle store to grab something to take to the elementary school.
We have lunch with Jake and his class. The girls love doing this and I am hoping it will allow Hope to get used to the school and following directions. Maybe this will help ease her into Kindergarten without issue. Next we head off to Grace's speech. She gets one on one direction from a speech therapist at the school three days a week. She does go into the room by herself. I wasn't sure at first if she would. I sat with her the first couple of times but she did get distracted and wanted to give up with me there. Now I make sure she knows Hope and I will be sitting right outside the room waiting for her. After about 45 minutes she is finished and I talk to the therapist for a progress report. She has some concerns but is confident that Grace can relearn some things. She drops the first and last consonant of every sound. She has a very difficult time with the letters B, P K, C....you get the idea any hard sound. I have yet to tell them that the hearing in her right ear may be permanently gone. I hesitate to share this as it may affect her eligibility for getting speech. And of course we just aren't sure yet...
Thursday, January 21, 2010
Tuesday, January 19, 2010
Sunday, January 17, 2010
I think some parents are just so tired of waiting or don't want to wait the now four plus years it is taking to be matched that they automatically jump on the special needs band wagon. Most will request a girl as young as possible with minor special needs. That is fine, however, I don't think most people realize there could be syndromes or undiagnosed special needs that just don't get reported or aren't really visible yet. I have seen and heard of a few families that fall in love with a picture but then when they get to China realize their child's special need is something more and don't follow though. In most cases these children are then left in the institution ans never adopted, in a good case scenario they will get the help they need or maybe have a second chance.
I guess my point is, do your homework. And then do more homework. Always be prepared.
With our second daughter we went to China expecting the worse case, hoping for the best but just being prepared. We were pleasantly surprised, her special need was not really a need at all.
But, and this is a big one, she was 22 months old and the size of a 6 mth old, she couldn't walk, sit up straight or eat solid food. She also has some sensory issues. It has been a long road but now, now she is a highly intelligent little girl who is very outspoken and loves being around other kids. She still has night terrors and has issues with textures, but you know what. She is OUR child and we love her.
Our third daughter had cleft lip and palate. Her referral paperwork said third degree cleft and that was it. We didn't know what to expect. She had also been living in a tent for four months after the earthquake. In some ways she was far advanced from our first daughter. She could walk, a little wobbly but she walked. She loved food and had attached herself quite easily to her daddy. She was always sick though, her ears were infected and she had pneumonia. They felt it was from her cleft issues and scheduled surgery once she was out of the hospital and well. Her surgery was a rough one. She had trouble with the anesthesia and had to have two blood transfusions. But, she did make it through. She will be in speech therapy for most of her elementary years,but that is OK.
Our fourth daughter isn't home yet. She sits in a orphanage waiting for us. We have a general idea what we will need once she is home but we are not sure. With any child you are never sure. I can't stress enough to just be over prepared. Do your homework on special needs and then do more. Have all your resources ready. Be prepared for something you didn't expect. Because sometimes the unexpected will happen.
I guess my bottom line is God will never give me more than I can handle. Also my kids are more than their special need. I can't define them as a "cleft baby" or a "club foot" baby ect. They are my children, my girls and I love them more than anything in this world.
When you get to China and if you happen to discover your child has a need that you are not prepared for, stop and pray and then think maybe your child has just shut down, I mean this is a huge change for them. You do not look like their ayi's or smell like them or even talk like them. Maybe this is their way of grieving. Or if the special need is more than you can handle, give it some time, maybe you will surprise yourself. Maybe you will find that you can do this. Give it some time. Maybe you will find a strength you didn't know you had. Also ask for help, many parents have been there before and would be more than happy to offer advice or help.
Thursday, January 14, 2010
Monday, January 11, 2010
Sunday, January 10, 2010
Hope ~ Banana
Friday, January 8, 2010
Hannah's patchwork scarf, perfect for the cold weather we are having lately. The other side is super soft suede!!
This is Mr. Snowman, Jake made him for me in class. Isn't he cute? Ya know I love snowmen!! I guess the crafty bug has gotten all the kiddos.
Thursday, January 7, 2010
Tuesday, January 5, 2010
Sunday, January 3, 2010
–noun 1. a period of waiting; pause, interval, or delay.
–adjective 2. serving or being in attendance: waiting man; waiting maid; waiting woman.
Waiting, it seems we are always waiting. Even if we don't realize it we are actually waiting. Waiting for our next meal, waiting for pay day, waiting for our birthday, waiting in line for a cup of coffee. Yep folks, we are always waiting.
Bear with me, I do have a point. When we are waiting for something so big and so important it seems to take the longest. In a sense you are in a period of delay or a pause.
Now reading the second meaning, I get a light bulb moment or an idea. Why not turn our wait time into a serving time or a time to help others, maybe that will make our time of waiting shorter and I will gain a perspective I otherwise would not have had.
Now if you read through all my jumble and got it, go, go and serve or help others, not only will it make you feel better, maybe your time of waiting will be shorter also.
Friday, January 1, 2010
Personally I am hoping for our LOA (letter of acceptance) sometime in January. We did get an updated picture from traveling parents. Rachel is getting so big. I really wish we could go get her. But, I have all the patience in the world and will wait however long it takes.
In the mean time, I am making these adorable birthday dresses/tops for our fundraiser. They are super cute paired with a pink top and jeans. (or alone with some funky pink/red tights!!) So please consider ordering one!!